Hello everyone, I was sent some essential oils in the mail to review from a friend I met on Instagram. I decided to put the products I review over on a different blog and if you check out the link below you will get to read about how essential oil can be helpful for people… Continue reading Check out my review blog
Hello everyone, The topic for the blog post today is a answer to a Periscope viewer question. It was a honest question from a viewer who has never heard of 22q and was trying to understand what it is. I was live on Periscope and a viewer asked me if having 22q deletion hurts… Continue reading Does having 22q deletion hurt ?
Hello everyone GeneFo is a resource I think many of you will find helpful. Last week I came across a new free patient crowdsourcing platform called GeneFo for people affected by Genetic conditions. The platform was designed by Stanford-trained medical geneticist, Dr. Yael Wilnai who came up with the idea when working with patients/caregivers and… Continue reading GeneFO A resource for rare genetics
Bella has a mild from of cp on top of having 22q11.2 deletion syndrome. I don’t blog much about her having cp as it’s so mild but she does wear leg braces at night and take backflen for leg pains. Today she ran 21 laps for fun run. I couldn’t be more proud of… Continue reading cerebral palsy and 22q11.2 deletion
Still here as seen in previous posts. I have been doing self care. As a caregiver we can often over look the burn out factor. I became burnt out friends! that is why there have been very few blog posts. I received all of your encouraging words and emails, as I reply to each one… Continue reading Self care while caregiving
Hello everyone. I will be back to regular blogging again. I am working on a routine for myself since the kids back to school routine has been in full swing since the 6th of September. Can you believe it is the 17 of September all ready? I am working on goals for my blog, … Continue reading Welcome back
Hello everyone. I am back from the summer blogging break . I am starting out with a meet and greet as many of you love meeting other people who I interview you. Let me introduce you to Anne. Meet Anne who is a book blogger from Taipei, Taiwan. You might think I only meet people… Continue reading Meet and Greet with Anne a book blogger.